Wednesday, April 23, 2014
Educate Yourself About Autism Before You Make Snap Judgements
Yes, my son has dyed his hair red. Yes, my son "talks to himself". Yes, my son isolates himself from others. Yes, my son does not look you in the eye, especially if he does not know you.
No, this does not mean that my son dyed his hair red because he heard about the Aurora, CO shooter who dyed his hair the same exact color red as the Joker's and went to a movie theater to shoot up the attendees of "Batman: The Dark Night". No, this does not mean that my son has turned schizophrenic and hears "voices" in his head and is answering to them. No, this does not mean that my son is contemplating any deviant behavior by withdrawing from the general population of high school students.
My son is "stimming", a very common characteristic of autistic children. His form of stimming involves an internal movie in his head that he has memorized and he verbalizes each scene, word by word, often acting out what he has seen. And about the hair color? He started with blue, being his favorite color, but then moved on to green, orange, and now red. Colors based on his mood or even just the season (green at St. Patrick's, orange at Halloween). Who knows why he chose red, but it sure wasn't because of the Joker in the Batman movie (by the way, he's never even seen that movie nor has heard of the Aurora movie theater shooting).
So when we got called by the school psychologist to come in for a meeting regarding the above (and regarding yesterday's post as well), we were quite concerned. Luckily, the psychologist has known my son and has been his case worker since he was 2 1/2 and in the special preschool for developmentally delayed kids here. She told us of the vice principal's concerns, clearly embarrassed over having to share them with us and very apologetic. She stood up for my son and totally explained to the VP how he is a gentle, innocent, and naive soul who has no malicious intent with regards to planning a form of school violence. We thanked her for standing up for our son and for reassuring us that she is on our side (and gently encouraged us to gently encourage our son to choose his next hair color with discretion).
But a day later. You know what? I'm pissed. How dare that VP jump to snap judgements over a 15 year old boy just because of his hair color and behaviors. My son! My sweet, loving, funny, and brilliant son who happens to be on the autistic spectrum. Please, people, especially if you are school personnel, please educate yourself about autism before you make such snap judgements.
Thank you.
Tuesday, April 22, 2014
Lowering That Bar Again
Tuesday, September 27, 2011
Finding the Energy to Give More
Monday, May 23, 2011
Parenting an Autistic Child
Some of what I read was disheartening, some other was a kick in the butt:
"Ambivalence is a normal state for me. It is hard to articulate what I seem to have lost, because it is something I never had. Annie was never going to go to law school--we knew that. Eventually we knew she was not even going to drive a car. What I miss is something vague and dreamy about a daughter growing up. I have fantasies of high school girls giggling in a bedroom behind a closed door, of long phone calls. I feel grief for the past, for all that there was none of, and grief for the future, for what there may be none of yet to come. Every parent loses a child, several children, as each successive child passes into the next--the chrysalis of the infant becomes the toddler, the toddler gives way to the child, and the child to the youth, and finally the adult. This is one element of being a parent, of being alive, though there is an enduring sorrow in realizing not that the child has died but that the adult anticipated will never be born.
"I feel sad and sorry for myself or pissed off, and then I feel petty because I'm sad and sorry for myself, because I'm complaining when things could be so much worse. She's not aggressive or incontinent. She can walk and make herself a sandwich and sleep through the night. And we're lucky, because as late as it was in coming and as vague as it is in explaining things, we did eventually get a diagnosis.
"Long-term studies of people with autism are not reassuring. Very few go to college, are employed, or lead independent lives. The supports of school are remove, and nothing takes their place.
"Don't ever say to her, and don't say to yourself, that there is any tragedy in who she is. She is what she is."
Thursday, January 6, 2011
The First Study Flawed
How the link was fixedThe Lancet paper was a case series of 12 child patients; it reported a proposed “new syndrome” of enterocolitis and regressive autism and associated this with MMR as an “apparent precipitating event.” But in fact:
Three of nine children reported with regressive autism did not have autism diagnosed at all. Only one child clearly had regressive autism
Despite the paper claiming that all 12 children were “previously normal,” five had documented pre-existing developmental concerns
Some children were reported to have experienced first behavioural symptoms within days of MMR, but the records documented these as starting some months after vaccination
In nine cases, unremarkable colonic histopathology results—noting no or minimal fluctuations in inflammatory cell populations—were changed after a medical school “research review” to “non-specific colitis”
The parents of eight children were reported as blaming MMR, but 11 families made this allegation at the hospital. The exclusion of three allegations—all giving times to onset of problems in months—helped to create the appearance of a 14 day temporal link
Patients were recruited through anti-MMR campaigners, and the study was commissioned and funded for planned litigation
Saturday, March 14, 2009
Albuquerque Conference, Part 2
- Rules are not absolute. They are situation-based and people-based.
- Not everything is equally important in the grand scheme of things.
- Everyone makes mistakes. It doesn't have to ruin your day.
- Honesty is different than diplomacy.
- Being polite is appropriate in any situation.
- Not everyone who is nice to me is my friend.
- People act differently in public than they do in private.
- Know when you're turning people off.
- "Fitting in" is often tied to looking and sounding like you fit in.
- People are responsible for their own behaviors.
Neat
Albuquerque Conference, Part 1
"Fear is the main emotion in Autism" -- Dr. Temple Grandin
Neat
Wednesday, March 4, 2009
The Wisdom of Yoda
I've been attending a monthly video conference series on Autism Spectrum Disorders (ASD) organized by our district's school psychologist for parents and staff who have kids or work with kids on the spectrum. Our current video is done by Dr. Jed Baker, author of the book No More Meltdowns: Positive Strategies for Managing and Preventing Out-of-Control Behavior. The conference we've been watching is called Social Skills Training and Frustration Management and is geared for kids with ASD. We've watched two out of three of the parts and so far I've taken a lot of information in from the video. But the one thing that "sticks" with me is a quotation that Dr. Baker uses that is extracted from the great Master Yoda himself.This message can apply to those with ASD as well as those who know them. The autistic person can have the fear, leading to the dark side. Or society can have the fear of an autistic person, leading to the dark side. Of course, bullying is part of the dark side, and can be caused by fearing the autistic child.Fear leads to anger,which leads to hate,which leads to suffering.This is the path to the dark side.
~~~~~~~~~
Neat
Wednesday, December 31, 2008
Two Worthwhile Books and an Honorable Mention

- An Asperger child looks at the world in his own unique way.
- An Asperger child often has exceptionally good hearing, and loud sounds and sudden movements may scare him.
- His other senses can be heightened too, such as touch and smell.
- He's often fussy about what he eats and wants the same food presented in the same way, day after day.
- Other kids make friends but don't invite him to play, and he may be bullied.
- He may become a loner caught up in a world of his own, where small things fascinate him for hours and he can do the same thing over and over again without getting bored.
- When he talks, he goes on and on about the same topic and bores everyone silly.
- Daily rituals comfort him and he likes a good routine and gets worried if the schedule is changed.
- He is honest, which is great of course, but sometimes he's too honest. Yet when he tries to tell a lie, he's not very good at it.
- As he grows older he senses that he is different from everyone else and feels as if he belongs on a different planet, like an outsider looking into a world he never truly understands.
- He knows what he wants and he wants it NOW.

- When opportunity presents itself, he goes for it, and may dive straight into a situation without thinking of the consequences.
- He is easily disorientated, he's always losing things, and often can't find what is right in front of his nose.
- An ADHD child can be distracted by things other people don't notice, and his priorities may differ from those around him.
- His senses can go into overload with everything going on, so he goes from one task to the next without finishing anything.
- Books can be hard to understand, and things learnt are tricky to remember.
- He doesn't know where to start, and even if there are instructions, he may not know how to follow them.
- People keep saying "You can do better if you try harder," but it's simply not true.
- Being very sensitive, he gets sad because he wants to be like everyone else, but he just can't.
Saturday, December 13, 2008
A Couple of News Links on Autism
Unique brain wave patterns, spotted for the first time in autistic children, may help explain why they have so much trouble communicating.
Using an imaging helmet that resembles a big salon hair dryer, researchers discovered what they believe are "signatures of autism" that show a delay in processing individual sounds.
That delay is only a fraction of a second, but when it's for every sound, the lag time can cascade into a major obstacle in speaking and understanding people, the researchers said.Imagine if it took a tiny bit longer than normal to understand each syllable. By the end of a whole sentence, you'd be pretty confused.
The study authors believe that's what happens with autistic children, based on the brain wave patterns detected in school-age children in their study..........In autistic children, response to each sound was delayed by one-fiftieth of a second."We tend to speak at four syllables per second," said Timothy Roberts, the study's lead author and the hospital's vice chairman of research. If an autistic brain "is slow in processing a change in a syllable...it could easily get to the point of being overloaded."........Roberts, the study author, said the findings fit with a leading theory that suggests autism is "a disorder of connectivity in the brain."
Allen Grabe shot his autistic teen son, 13-year-old Jacob, September 11. Jacob has autism, though at least one report said he had Asperger's syndrome. Grabe killed his autistic son with a pistol inside their home in Colorado. Allen Grabe is being held on $1 million bond at Mesa County Jail on "suspicion" of first-degree murder. Suspicion? You mean a leprechaun might have pulled the trigger? Authorities offer no motive as to why Allen Grabe would kill his autistic son.Denver Post readers have offered their theories: Raising an autistic child could be very stressful.
Well, that theory is bull because it implies that raising an autistic child could turn a normal father into a murderer. It implies that Allen Grabe was otherwise normal. It suggests that Allen Grabe would have been a normal father had his son not been autistic. It also implies that Jacob's autism was severe, versus mild, even though he attended a regular school and routinely played with a 14-year-old neighbor. It implies that Jacob Grabe's autism was an alarming impediment, even though the mother of the 14-year-old described Jacob as "a very, very smart boy," and another neighbor described him as being friendly and polite.
Yes, a smart, polite autistic boy could also have meltdowns, but this does not excuse the father for killing him, and it should not even be implied that "stress" from raising an autistic child could lead a parent to murder. How about the theory that Allen Grabe was just plain evil? After all, Jacob, though with autism, sounds like he was a pretty cool kid: another neighbor, who wished to remain unnamed, said Jacob raised money for school by selling cookie dough, candy and other things in the neighborhood. Plus, Jacob ran track. Sounds like a high-functioning autistic child to me. This neighbor is quoted: "He was a great kid."The article continues and discusses what should happen to Grabe. I agree with the author when he says, "lock the evil man up in prison for life."
Monday, November 3, 2008
Fixing Autistics?
From her blog, she writes: I am no longer scouring the internet looking for a "cure" or even a "cause" but rather spend my time helping him find out who he is and how to give him that one thing that everyone in this world needs...Passion. Don't get me wrong here, I still try every day to help him learn and grow, just like any other parent helps their child. The difference is that I no longer feel the need to "fix" him.
Thursday, October 16, 2008
Why I Ban Anything Denis Leary....
"There is a huge boom in autism right now because inattentive mothers and competitive dads want an explanation for why their dumb-ass kids can't compete academically, so they throw money into the happy laps of shrinks . . . to get back diagnoses that help explain away the deficiencies of their junior morons. I don't give a [bleep] what these crackerjack whack jobs tell you - yer kid is NOT autistic. He's just stupid. Or lazy. Or both."




